It’s been awhile! I haven’t had anything to say that hadn’t already been said or needed to get anything off my chest bad enough to write it down. But the stress of the last few months has finally taken it’s toll and it needs to go somewhere. Everyone seems to be writing about autism awareness or whatever way they want to word it. And, while I do believe the world needs to be educated on the kiddos and adults who are living with it everyday, that is not entirely what I want to say. I feel like many many others have done a fantastic job of that, and I will bow out gracefully and leave them to it. 😉
We have been struggling to say the very least with a school system who is doing everything in their power to drive me crazy. Their complete lack of compassion or empathy towards children with “disabilities”, as they like to put it, is sickening and disgusting. With all that has been going on in National news, you’d think they could pull their heads out of the sand long enough to make a rational decision about how to deal with and educate the children in their district. But sadly, their lack of empathy and understanding of these little one is ridiculously non existent and, quite frankly, just down right sad.
Our journey started in Dec of Roo’s kindergarten year. I guess I shouldn’t say our journey started then, I guess I should say our realization and diagnosis of just how special Roo is started then. He had a wonderful teacher who was quick to notice some of the quirkiness that is my Roo. She didn’t name it but she did point us in the direction of getting it named. And once diagnosed by a professional she smiled and nodded in agreement. I went gung ho. I read everything I could get my hands on, researched all the different things I needed to do to help him succeed. I started searching for a way to cure him and then realized that a cure wasn’t what I needed. I contacted all the right people and tried to get services put in place for my son and kept hitting brick wall after brick wall. He’s to high functioning, he’s too smart, he’s too capable. He didn’t qualify. I was upset and didn’t understand, but he had a phenomenal teacher who got it and made modifications and he had a tremendously successful year.
Then came first grade, honestly I wasn’t prepared for the hell that first grade would be come. The teacher assured me that she was specially trained in autism and they were going to have a great year. I had created a letter explaining Roo’s quirks, what helped, what made it worse, what he could and couldn’t eat. She threw it away, although I didn’t know that till almost the end of the year. She did everything in her power to get him out of her class, as did I to no avail. Needless to say it was a huge relief to see that year come to an end. Some people just are not meant to teach. And even then with all the problems, he didn’t qualify for services. By then end of the school year I was bound and determined to get Roo in the right class the next year. I promised to stay camped out on the principals desk till I got my way and she took me seriously.